Hemiplegic Migraine Guide – Axon Optics

Hemiplegic Migraine Guide

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Hemiplegic Migraine Guide

Woman with partial facial paralysis
Woman with partial facial paralysis.

A Hemiplegic migraine is one of the more severe migraine with aura types. It is also one of the more frightening types of migraine. Its symptoms strongly resemble those of a stroke and this can be terrifying for patients who don’t know what is happening. However, even for those who know what is happening to them there is often little consolation. Hemiplegic migraine is so rare there aren’t many doctors who know how to treat it – or even diagnose it. This leaves hemiplegic migraine patients with fewer resources than many other types of migraines.

Patient accounts reveal the terrifying, debilitating nature of this condition.

I was recently diagnosed with hemiplegic migraines but it is such a rare condition I had a lot of trouble finding a doctor to diagnose and treat me. Many doctors don’t even know anything about it or not enough to treat it effectively. I had to drive several hours to another city just to talk to a doctor who could treat it.

My attacks are very long and I start having symptoms about two days before the attack. It will start with a dull but severe ache in the back of my head. My head feels very heavy and there is nothing I can do to escape the pain. I have no energy and am exhausted. All I want to do is sleep. The second day (the day before the attack) I usually start to have trouble with my balance. I stumble and stagger. My speech also begins to get slurred.

When the attack starts, it gets really scary. The whole left side of my face starts to droop and I get a numbness in my face, arms, and legs. I also have a hard time swallowing and get nauseous. I have a lot of trouble seeing, my vision is dim and blurry. As the attack goes on, I will start to feel paralyzed, unable to move my arms and legs. Some attacks are so severe my bladder won’t work so I have to check into the hospital and be catheterized. I have also lost consciousness with an attack.

After a couple of days the attack will start to subside. I regain the feeling in my face, arms, and legs and the paralysis goes away. It isn’t all at once though. Sometimes it takes three weeks for all the symptoms to go away completely. I do notice that I have learning problems and some short term memory loss. I am also tired all the time. Sometimes it feels like these migraines have hijacked my life.


Hemiplegic migraines are very rare. In fact, a study in Denmark in 2002 found that out of more than 27,000 people who experienced headaches, only 147 had a confirmed diagnosis of hemiplegic migraine. This rarity, coupled with the complexities surrounding this type of migraine, make it difficult for doctors to diagnose and treat. In fact, the symptoms of hemiplegic migraine often lead to a misdiagnosis of stroke. This also makes it difficult to treat so for the most part doctors use symptom and pain management techniques including both over the counter and prescription medication.

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What is Hemiplegic Migraine

Hemiplegic migraine is an extremely rare type of migraine with aura. Researchers estimate that it is present in only about 0.005% of the population. Dr. Mark Khorsandi, a migraine surgeon at the Migraine Relief Center in Houston, Texas, says, “A hemiplegic migraine occurs when the migraineur experiences paralysis on one side of the body. The attack may also cause aura and visual changes, difficulty in speech, and confusion. Some have likened the symptoms of this type of migraine to that of a stroke.”

This video, posted by a hemiplegic migraine patient, was shot during one of her attacks. You will notice she has paralysis on her left side – she is dragging her left leg and her left arm is completely limp. She is having to be helped to the restroom by her mother and sister.

The extent of the paralysis shown here may be upsetting for some viewers.


This type of migraine is defined by very specific symptoms that occur early, in the headache’s aura phase. Partial paralysis, difficulty speaking, and drooping on one side of the face look alarmingly like signs of a stroke, but can, in fact, be symptoms of hemiplegic migraine. This can be frustrating to patients who have to deal with these symptoms, but many doctors feel it is better to err on the side of caution and begin evaluation and treatment in case the patient is indeed having a stroke. Unfortunately, this does little to bring relief because the origins and causes of the conditions are not the same.

The rarity of the condition, combined with the severity of the symptoms often complicate the diagnosis. Since these symptoms so closely resemble a stroke or transient ischemic attack (mini-stroke), that is typically the first diagnosis, although Dr. Khorsandi has also had patients come to him who were first diagnosed with severe sinus issues but were later identified as hemiplegic migraineurs. Many times, it isn’t until further evaluation that a diagnosis of hemiplegic migraine is considered.

Types of Hemiplegic Migraines

There are two types of hemiplegic migraines, familial and sporadic. While the symptoms are the same, the types are characterized by the genetic component and incidence among family members. The diagnosis of type comes after the initial diagnosis of the migraine itself.

Familial hemiplegic migraine (FHM) – This is based solely on family history. If another family member has been diagnosed with a hemiplegic migraine, then others in the family who are diagnosed later with the same thing will be typed as familial.

Sporadic hemiplegic migraine (SHM) – When a person is diagnosed with hemiplegic migraine, yet there is not family history, they are typed as sporadic. However, if any family members are later diagnosed with hemiplegic migraine, those family members will be typed familial. The patient diagnosed with sporadic hemiplegic migraine will retain their original diagnosis.

Cause of Hemiplegic Migraine

The cause of hemiplegic migraines is very complex. There are certain genes involved that can involve entire families. Dr. Khorsandi explains, “There are two different types of hemiplegic migraines – familial (FHM) and sporadic (SHM). FHM is a genetic condition associated with gene mutations. SHM occurs in people without the family history of the disorder.”

To further clarify, hemiplegic migraines tend to run in families, meaning that there is a genetic component. However, a SHM can occur in a patient with no family history and potentially initiate a FHM occurrence if other family members begin experiencing them. This means that a family can have no incidence of the migraine, then the gene mutates in one person. From that point on, that mutated gene has the potential to be passed on to children, grandchildren, and so on through the direct family line. A husband cannot “catch” it from his wife and it cannot be transmitted from one person to another except through heredity where the gene is passed to the children. It is also worth noting that the mutated gene can be passed on without any symptoms, only to show up a generation or two later.

Hemiplegic migraines are also susceptible to the same typical triggers that provoke other migraines. These include:

  • Odors
  • Light
  • Foods
  • Stress
  • Exertion
  • Minor head trauma
  • Cerebral angiography (a medical test that produces images of the brain’s blood vessels – it is the contrast, which contains iodine, that is given to the patient that can cause a migraine)

Signs and symptoms

Signs and symptoms of hemiplegic migraine can vary in incidence and severity, depending on the patient. Some of the most common include:

  • Decreased motor function (i.e. clumsy, can’t perform fine motor skill activities like buttoning a shirt or tying your shoes, or difficulty controlling the pen while writing)
  • Visual disturbances (i.e. blurry or double vision, flashing lights, blind spots, light sensitivity, and zig zag patterns in the field of vision)
  • Hemiparesis (weakness that occurs on one side of the body, affecting that entire left or right side – occurs with one or more other symptoms present during the aura)
  • Sensory loss (i.e. numbness or tingling in the extremity or face)
  • Hemiplegia (paralysis that affects one side of the body)
  • Aphasia (difficulty speaking, inability to speak, or inability to comprehend speech – often occurs with weakness on the right side)
  • Drooping on one side of the face
  • Neurologic symptoms
  • Confusion
  • Attention difficulties
  • Fatigue (i.e. drowsiness, extreme tiredness, or inability to stay awake)
  • Impaired consciousness
  • Memory loss
  • Psychosis
  • Tremor

The neurologic symptoms of a hemiplegic migraine can range in length from hours to days. They may subside gradually until the patient returns to normal. Symptoms such as memory loss and attention difficulties can last much longer, from several weeks to several months. However, visual, language, sensory, or motor symptom permanence are extremely rare.

Severe attacks involve more troubling symptoms but fortunately, they are very, very rare. Symptoms of severe attacks of both types of hemiplegic migraine include:

  • Prolonged hemiplegia (the paralysis that occurs on one side of the body takes longer – days or weeks – to subside
  • Coma
  • Fever
  • Seizures (common in some forms of FHM)

Diagnosing Hemiplegic Migraine

Doctors diagnose hemiplegic migraine by assessing specific symptoms and signs as well as incidence of attacks. For most people, it is not necessary to undergo genetic testing.

The diagnostic criteria for hemiplegic migraine are:

  • The patient must have had at least 2 attacks and the attacks must have had:
  • Aura with motor weakness that fully reversed after the attack, and
  • Visual, sensory, and/or speech/language symptoms that fully reversed after the attack
  • The patient must also have at least 2 of these characteristics:
  • One or more aura symptoms that gradually spread over 5 minutes or longer (≥5), and/or at least two symptoms that follow
  • Non-motor aura symptom that last 5 to 60 minutes (counted individually, not as a group), and motor symptoms that last less than 72 hours (<72)
  • At least one aura symptom that is one-sided (unilateral), including hemiparesis, hemiplegia, and drooping on one side of the face.
  • A headache accompanies the aura or a headache occurs within one hour of the aura.

As part of the diagnostic process, the doctor must rule out all other potential conditions that could be causing the symptoms. This means eliminating the possibility of transient ischemic attack (mini-stroke) and stroke. It should also be noted that although the diagnostic criteria call for symptoms that are fully reversible, it does not discount or exclude the possibility that some patients who experience severe attacks may experience neurological problems that are not reversible and remain with them for the rest of their lives.

Woman being examined by a doctor for a hemiplegic migraine diagnosis

A sporadic hemiplegic migraine requires that the patient is the first in his or her family to have an attack, meaning that no first or second degree relative has had an attack that meets the diagnostic criteria.

A familial hemiplegic migraine requires that the patient has one or more first or second degree relatives who have had attacks meeting the diagnostic criteria. Also with FHM, genetic testing for the condition is available

To clarify first and second degree relatives:

  • A first degree relative is someone’s child, sibling, or parent.
  • A second degree relative shares 25% of someone’s genes – aunt, uncle, niece, nephew, grandchildren, grandparent, and half-sibling.

Treatment of Hemiplegic Migraine

Hemiplegic migraine treatment is not usually a straightforward process. The treatments generally focusing on symptom management as opposed to elimination of the condition. The doctor must take into consideration a variety of factors, including:

  • The severity of the symptoms
  • Identifying and focusing on the symptoms that are the most problematic for the patient

Dr. Khorsandi adds, “Like most migraines, the causes and treatments will vary from person to person. For those who have the familial type, it can at least be traced back through the family and a treatment plan can be created.”


Medication are often used to manage the symptoms of hemiplegic migraine, but it has also been found that drugs used to prevent common migraines may be effective for this condition as well. These treatments for SHM and FHM are often reserved for patients whose attacks are severe, long lasting, and frequent. Still, they only offer symptomatic support during the migraine attack.

There is very little correlation between the type of hemiplegic migraine and the patient’s response to the drug therapy that is used. Some of the types of drugs that may be used include:

  • Acetazolamide
  • Beta blockers
  • Tricyclic antidepressants
  • Calcium channel blocker
  • Oral Verapamil
  • Intravenous verapamil
  • Anti-epileptic
  • Acetazolamide
  • Lamotrigine
  • Nasal administration of ketamine
  • Triptans for treatment of aura

Tipped over bottle of hemiplegic migraine medication

Management of Environmental or Lifestyle Triggers

Since typical migraine triggers can also trigger hemiplegic migraines, eliminating those triggers can also help to manage the condition. Common migraine triggers include:

  • Sensory stimuli:
  • Odors – secondhand smoke, perfume, gasoline, paint thinner, diesel and others
  • Lights – sun glare, bright lights, light glare at night, LED lights, fluorescent lighting
  • Noise – loud or repetitious sounds, heavy bass in music
  • Beverages such as diet sodas and drinks that contain a lot of caffeine as well as wine and other types of alcohol
  • Food additives like monosodium glutamate (MSG) and aspartame (artificial sweetener found in most “diet” sodas)
  • Processed foods as well as aged cheeses and foods that are very salty
  • Sleep issues – sleep deprivation, too much sleep, interrupted sleep, apnea, jet lag
  • Exertion – intense exercise, extreme sexual activity, extensive physical exertion
  • Medications – nitroglycerin and other vasodilators as well as oral contraceptives and other drugs
  • Environmental changes- barometric pressure changes, weather changes, climate changes (moving from one geographical location to another), intense heat, intense cold

By identifying their migraine triggers and learning how to manage them, patients will often notice a significant improvement in the frequency of their migraines and symptoms, or they may find their headaches are eliminated altogether.

Natural Treatments

Some migraine patients choose more natural treatment options for their migraines. While these may help relieve symptoms and even prevent some migraines, they may not help with more severe attacks. Additionally, most of these alternative migraine treatments do not have a lot of research behind them and some may be controversial. However, there are migraineurs who have found relief and, who knows, they may work for you too.

  • Precision tinted lenses or “migraine glasses
  • Chiropractic
  • Acupuncture
  • Yoga
  • Stress relieving exercises or activities

How to Help Someone Suffering from Hemiplegic Migraines

Migraines are often referred to as an “invisible disability or condition” because the symptoms are usually not physically apparent. The patient will likely only exhibit the physical symptoms like hemiparesis or hemiplegia during a hemiplegic migraine attack. When they are not having an attack, they may look and act as if they have no condition at all. However, even when the symptoms are not present, a person who has been diagnosed with hemiplegic migraine has the condition all the time and they could have an attack at any time. It just may not be apparent until there is an attack and the symptoms occur.

If you have a family member or friend who has hemiplegic migraine, this is very important to understand. Take some time to educate yourself on hemiplegic and become familiar with the symptoms, especially since some of them can be pretty scary and the patient has no control over an attack (even when managing it with medication). Work with the person to have a plan of action when an attack occurs so that you know what to do, whether it is helping them to bed or taking them to the emergency department of the hospital. It is also important to understand that the person may experience depression or anxiety – or both – before, during, and after an attack.

People hugging for hemiplegic migraine support

If you are a manager or business owner who has an employee with hemiplegic migraine, sit down with them to learn how the condition affects them and if there are any special accommodations that can help such as controlling migraine triggers or providing flexible leave or telework when the employee has a migraine. Institute a plan with the employee so that if they have an attack at work you know how to respond appropriately, such as calling a family member to pick them up.

If you have Hemiplegic Migraines

The first and most important thing you need to know is that no part of your condition is your fault. You cannot control this condition so the best thing you can do for your own peace of mind is educate yourself and learn how to manage your symptoms. Learn about reasonable accommodations that are available to you at work or school, and take definitive steps to control the things that you can.

It is also important to create a strong support system. Studies show that people who suffer from chronic health conditions benefit greatly from a good support system. Don’t be afraid to let the people who care about you in so they can provide emotional support and help when needed. This doesn’t make you weak; it makes you smart. None of us is an island. We all need people in our lives. If you don’t have friends or family nearby, find a support group for hemiplegic migraines, migraineurs, or chronic conditions. You can also join online groups or forums:

What is on the Horizon

Hemiplegic migraines are rare and there isn’t much research regarding treatments, but it is slowly coming onto the radar of key players in migraine research. Xenon, a clinical stage biopharmaceutical company is currently conducting research on hemiplegic migraines to better understand hemiplegic migraine patients’ symptoms and their experiences with the condition so that they can develop better treatments. The condition is gaining attention and more studies are expected to start up as more awareness is brought to the condition. In the meantime, there are treatments that do work and provide at least some relief. Dr. Khorsandi sums it up very well.

“You may be prescribed an anticonvulsant or heart medication to widen blood vessels if you are suffering from this type of migraine,” he says. “There is little research on these migraines, but migraine doctors are opening up new types of medication that can help with these attacks. We recommend keeping a migraine diary to track triggers of an attack, or consult a doctor or neurologist specially trained in migraines.”

In other words, there’s hope on the horizon.

Sign that says hope for hemiplegic migraine sufferers

Organizations for Resources and Help with Migraines

  1. American Headache Society Committee for Headache Education (ACHE)
  2. American Migraine Foundation (AMF)
  3. Migraine Research Foundation
  4. National Headache Foundation
  5. The Migraine Trust


GARD: Genetic and Rare Disease Information Center (n.d.). Hemiplegic Migraine. Retrieved April 25, 2017, from https://rarediseases.info.nih.gov/diseases/10768/hemiplegic-migraine

HEYCK, H. (2005, June 23). VARIETIES OF HEMIPLEGIC MIGRAINE. Retrieved April 25, 2017, from http://onlinelibrary.wiley.com/doi/10.1111/j.1526-4610.1973.hed1204135.x/full

Jen, J. C. (2015, May 14). Familial Hemiplegic Migraine. Retrieved April 25, 2017, from https://www.ncbi.nlm.nih.gov/books/NBK1388/#fhm.Clinical_Description

Migraine Surgery | Migraine Doctors. (n.d.). Retrieved April 25, 2017, from http://www.themigrainereliefcenter.com/

Optics, A. (2015, December 8). The Connection Between Photophobia and Migraine. Retrieved April 25, 2017, from http://woocommerce-200515-1425366.cloudwaysapps.com/2015/12/the-connection-between-photophobia-and-migraine/

Optics, A. (2017, March 14). Reviewed: Top 5 Migraine Tracking Apps. Retrieved April 25, 2017, from http://woocommerce-200515-1425366.cloudwaysapps.com/2017/02/top-5-migraine-tracking-apps/

Robertson, MD, C.E. (n.d.). Hemiplegic Migraine. Retrieved April 25, 2017, from https://www.uptodate.com/contents/hemiplegic-migraine

Team, J. W. (n.d.). Accommodation and Compliance Series: Employees with Migraine Headaches. Retrieved April 25, 2017, from http://askjan.org/media/Migraine.html


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33 thoughts on “Hemiplegic Migraine Guide

  1. Sue Pocknell says:

    I was diagnosed in 1986 and have had many many since. I have been to many neurologist and I am finally on topomirate 400mg a day which helps somewhat but I also have neurological occipital headaches which are just as debilitating and the barometric is killing this year

    • Vanessa says:

      The barometric pressure is a huge trigger for my Hemiplegic Migraines! I get them from Feb through June only. 3rd year in a row

  2. Jean matthews says:

    I have recently been prescribed gabapentine 100mg dose 3times a day for my hemapligic migraines I cannot take beta blockers as I have. Asthma anyone else out their taking gabapentine

    • Judy says:

      Hi Jean, I take gabapentin but 900 mg a day, but it’s only going to help you with any burning nerve pain. It’s not going to prevent any hemiplegic migraines. Are you seeing a migraine specialist? There’s several very good HM groups on FB. Please join Worldwide Hemiplegic Migraine Support Group and you will learn more. I learned more from the group than my neurologist that treated me for 6 weeks and didn’t even know what HM was and now I’m losing my hearing and can’t get into a specialist for another 3 1/2 weeks.

  3. Cynthia Partridge says:

    My name is Cynthia and I have HM. It’s a nightmare to me. I am 37 years old and it has scared me. I am depressed and I cry alot and keep on fighting this . I am looking to talk with other who have this and am try to find treatment. Its been a battle to say the least. Any help is appreciated..right now it’s looking like a move to Houston might not be a bad thing to be closer to Doctors who know something of this.

  4. Gem says:

    I had one thanksgiving day. 2017.. I already had a migraine for 5 day’s in a row… I took Advil I barfed it up not even 10 mins later… My hands went numb I lost speech it was slurred & I wasn’t making any sense. Felt like I was going to pass out.. The nurses at ER… Thought i was having a anxiety attack I know I sounded like charley browns parent’s.. I could hear her but .. I just couldn’t comprehend what I was trying to tell her what was going on I felt like I couldn’t breathe it felt like my heart stopped beating and I just wanted the lights to go away it’s an extremely horrible feeling especially when you can’t explain to somebody else what is going on when you’re having an episode of a hemipelegic migraine…. sometimes they last a few hours other times I’ve had them last few days my fine motor skills become shot other people’s comprehension of understanding my speech I can understand what everyone is saying around me however answering them back becomes a problem because it doesn’t come out right… it makes me stutter….. Thax for reading.

    • Diana says:

      I have similar symptoms. I have a note on my phone explaining my condition and usual course of interventional treatment. ( I. V fluids, to radio, benadryl , promthhazine and magnesium. ) my inner circle know to recognize the problem, ask me yes/no questions and direct medical personnel to the note in my phone.

  5. Keiko says:

    I have FHM, I have had them since a young child. I have grown up being accused by Drs of being a hypochondriac, when I don’t have attacks I am still tired, still have the aura, have vertigo. I like rollercoasters but I have to be careful what rides I go on. Too extreme the day out is ruined because the vertigo triggers another attack. I work a low paying job because its A job i can actually manage and my boss looks out for me, but i gave up on my dreams of serving my country.
    I don’t have many friends because of this. I over react and get depressed easily and ruin relationships because of this. What man wants to be with an invalid, i don’t even want to have kids knowing they will have this condition. I want more than anything to have a family but i don’t want them to suffer like i do. The depression that comes with this is horrible.

    • Christine says:

      Hi there! I hear you! I work with something called
      Acceptance and Commitment therapy and this would help you so much! The less I fight w my symptoms, the better I do. Please
      Search this treatment out! And be sure to find a competent therapist that can take you through because trying it on your own can be unhelpful.

  6. Angela M. says:

    I was recently diagnosed with SHM while also having Moya Moya Syndrome. It’s taken years and years for this diagnoses as the symptoms are so similar to MMS that it was perceived to stem from that. It wasn’t until I was pregnant that these SHM hit me so hard that a neurologist recognized the symptoms. Unfortunately, 95% of neurologists and doctors I came into contact with didn’t know or believe it because it’s was ‘too rare’ and my brain was ‘too healthy’ despite having visible migraine spots on MRIs. I’m on Verapamil therapy and it’s very helpful but when an attack is triggered, my whole left side becomes paralyzed, facial droop, complete loss of motor function of my tongue and inability to swallow. The pain is the worst I’ve ever experienced and I black out if left untreated. The only things that have consistently worked was 50 mg of IV Benadryl, 2 mg of Dilaudid, Phenergan, oxygen, and magnesium supplement. It keeps me conscious and able to communicate although my symptoms can take weeks to clear up. I can’t tell you how many times I’ve been labeled a drug seeker despite an extremely well documented history of every migraine protocal treatement that has failed. That combination actually saved my daughter’s life while I was pregnant with her because the pain was so bad she went into distress. No one knows what SHM is and I’ve suffered for years but finally have answers. I also happen to be moving to Texas and hope to experience better care down there.

  7. Rochelle says:

    Hi, I’m new to this all. I started having auras in 2015 a week after my b-day. Though it was stress, but within two months had almost all the system’s. Everyone in my family gets migraines except for me. But then it was like my brain was making up for all the years I didn’t have them. Oder, Lights, Food, Stress, Exertion, Decreased motor function, Visual disturbances, Hemiplegia, Aphasia, Neurologic Symptoms: confusion, attention difficulties, fatigue, impaired consciousness, memory loss, tremor. The neurologist I sow thought it was just a symbol migraine with an ear infection. He went so far as say I needed tubes in my ears because the medicine wasn’t taking away the infection even though my ears were clear. Had me go to physical therapy for almost 6mnths then I had drooping on one side of my face. Side I had a TIA ( small stoke). I put my foot down and requested to see someone else.
    I was sent to the Mayo Clinic in Rochester MN. I was so scared because they are the best in almost everything major diseased so I thought the worst. The doctor came in asked me a bunch of question’s and when I told him that my spells last for day’s not minutes. He didn’t look at me odd or call me a lier like the last few doctors did. He looked at me and said you are having Migraines. My sister and I said they can’t be, look at every thing I’m dealing with my siblings don’t get all this with there’s. He said I’m sorry your special you are having HM. We did testing and found I had SHM. Then I told him something I had not told the other doctors. I was missing time. Not just hours or day’s, but months of my current memory was gone. Every day memory was hard to. My kids have to remind me to do basic things some times. I thought I was losing it.
    He said it’s not uncommon with HM and if an attack is bad enough someone can have a completely different personality change during there episode. Then go back to normal once it’s over and not have any memory of it until day’s, month’s or even years later. I’m on Verapamil 240mg’s because i forget to take my med’s. He also had me buy a Cefaly device that I use once a day. It sends pulses though my head to keep the attacks at bay. If I so much as miss one pill of treatment. I wake up with my right leg numb and a headache that turns into a migraine. The Cefaly device can only be bought in MN at this time. The rest of the states have not been approved for it. But I would differently look into it if I were all of you.
    I still am dizzy a lot and confused and I have numbness at lest once a month but the pain in minimal and the light, smell and noise is all but gone 90% of the time. My memory is returning slowly and I wish it didn’t because I’m finding out I did somethings that is so not me and I’m wondering why no one said anything.
    I studded and my head shakes when I’m getting a migraine now, I know that sounds bad. But there my warnings to get somewhere dark and safe to stop it from getting worse. I’m looking at applying for disability because my confusion is bad at times and I live in MN and the atmosphere is really hard on me. I’ve missed to much work due to being confused. I know whats going on and what needs to be said but it’s like my mouth and brain forget how to talk to each other. I went from being a very active mom working over 60 hours a week to barely working 20 hours a week and not being able to go outside with my kids.
    You maybe thinking then how does your device and meds work? My life had improved believe it or not. I quickly became a shut in curtains drawn not working, having children whisper all the time wearing sunglasses in the house. To know more glass’s the kids can be there loud and normal kid happy self, being back at work. I just have a lot of triggers I have to be aware of. My doctor also say’s it has better affect on people that don’t have as many systems as me. But I have made a vast improvement and it will only get better from here we hope.
    I hope this was helpful to some of you.

  8. Mia says:

    I have 3x episodes of Rt sided body weakness. I have residual weakness to my Rt eyelid/face, mild weakness to Rt side of my body and still experiencing Rt sided headache and pressure. My neurologist said I have stroke with negative imaging but after my 3rd attack his leaning on hemiplegic migraine for my diagnosis due to my attacks are closer to each other. I’m just wondering and does not have any explanation yet as to why my blood pressure is severely elevated every time I have an attack, otherwise it’s normal when I’m ok. Does anybody have this issue too. Thank you!

    • Tonya L Taylor says:

      Hello Mia,
      I know exactly what you are going through. I had what the doctors thought were 3 strokes. My pcp became extremely concerned about the frequent attacks, and I began my journey of test after test. Finally, I was diagnosed with FHM. My pressure is normal until I have a migraine then it goes through the roof. My doctor says the pain is causing the spike in my BP. I hope this helps you.

  9. May Clark says:

    I suffer with this type of migraine and get diarrhoea with it. My specialist told me that migraines are actually a germ which starts in the stomach. It makes it’s way through the bloodstream to the base of the brain and then the migraine cannot be halted. I have Pethadine and Maxilon injections. Has anyone heard of any of these symptoms?

  10. Davy says:

    There is treatments for migraine headaches now, i got it from a trodomedical doctor who lives in Africa, i ordered for his natural herbal medicine which he sends the drugs over to me here in United States, and I used it as he had instructed me to, for over four months now I haven’t feel any pain like headache, that’s why I’m telling those who think there is no cure, my dear, there is a cure and if you need help please kindly contact these email addresses, tradomedicalhealer@gmail.com

  11. Shannon says:

    I have had a problem with the diagnoses on my Hemiplegic Migraines. They diagnosed me with TIA’s instead. I have suffered from migraines since I was about 12, but 6 years ago they evolved to this. My mother suffers from Hemiplegic Migraines so I believe that is what I have. Has anyone else had this problem?

  12. Jimmy says:

    I am a 35 year old male , and have had this type of migraine since I was 11 years old . I still remember the very first one. I am employed at a federal prison and it’s hard to explain to the supervisors ,and other staff how serious this issue is. Due to the migraines I have to miss a lot of work, and they just won’t accommodate. Is there any type of disability that I can file for ? I get them often , but it seems the older I’ve got the headache that follows the auro’s aren’t as bad as they used to be, but the auro’s hit me really hard. It seems to me the only people I can talk to about this are people that have the same condition. My mother has them , but not as bad as me, and now both of my son’s have them

    • Lori Glover says:

      Axon Optics glasses block the light that has been implicated in triggering sensitivity to light and migraine. Our SpectraShield FL-41 is effective for about 90% of our customers. Insurance plans, workers compensation vary among individuals. I recommend contacting your insurance carrier to see what is recommended for your particular policy. You may also consult your human resources department.

      Some medical insurance will cover, some will only cover if pre-authorized, some will only cover if a doctor prescribes the tint. It is the same situation with Vision Insurance – some might, depending on their authorization method. You can usually get it reimbursed through an HSA, FSA, HRA, or other “Cafeteria Plan” Tax-Exempt Health Account. In some cases, knowing the insurance billing code makes a difference.

      Axon Optics offers a 30 day return/purchase price refund policy so customers can test our product for a trial period. Whether you have perfect vision or need prescription lenses, we recommend first trying our non-prescription lenses in one of our frames to be sure the lens helps you before investing in a nonrefundable custom order. One week is the perfect amount of time to try out our lenses. Most customers know by then if they are effective.

      If you wear prescription glasses all of the time, I recommend the Cover Rx frame. All non-prescription Axon Optics frames have the 30 day return policy and are covered by a 1 year warranty. You can shop our glasses at http://woocommerce-200515-1425366.cloudwaysapps.com/product-category/migraine-glasses/

      You can find additional information, our full return policy, and our return form on our FAQ page at http://woocommerce-200515-1425366.cloudwaysapps.com/natural-migraine-relief-help-faq/

  13. E says:

    I’ve had Hemiplegic migraines since I was about 3 years old, they were quite sever and frequent when I turned roughly 7 or 8 (I’m 17 now) and never have I ever read about someone else with such close similarities to the my actual attacks other than some of my family members. Nobody truly understands it unless they too have experienced it and you explain it- or seem to experience almost the same thing I do (except mine only last between 30 minutes to a few hours and the symptoms seem to go away with 12 hours)

  14. Eliza says:

    I had my first attack when I was 7. It started out as what I can only describe as “a weird headache” when I was playing outside with my friend. After returning home, I fell asleep very quickly on the couch. When I woke up not much later, my right arm was draped over the side of the couch. I couldn’t pick it back up because it was so heavy. After my grandma thought I was fooling around because I was falling into things, she rushed me to the hospital thinking I was having a stroke. I was in hospital for the rest of that weekend, even though the symptoms passed within a few hours. Now 11 years later I have had several more attacks, most of them not so severe. I’ve been on different preventative medications, but all three of them came along with terrible side effects that I couldn’t deal with. I now take Cambia, which is taken right when a migraine occurs. It doesn’t fully stop the migraine, but it definitely lessens the symptoms and makes it easier to deal with. For the last couple of years, I’ve typically had only one or two attacks a year, never more than three. I wouldn’t wish this condition on anyone. I would say that the worst part of the whole thing is the headache that follows the weakness or paralysis. It lasts forever and is the most extreme pain besides what I imagine breaking a bone or giving birth would be like.

  15. Aubrey says:

    I was just recently diagnosed with HM. I had a traumatic brain injury in 2012 and started having migraines with RT sided paralysis in the arm and leg, facial drooping, unable to swallow, I couldn’t focus on what people around me were saying. Everything was confusing, I couldn’t find the right words or even speak at all sometimes. I get a tremor in my right hand, lose my hearing and vision in my RT eye and ear. Sometimes they last for hours and other times for a day. The symptoms usually start within a day or two before and can last sometimes weeks afterwards. Recently I have been having them every week. So the symptoms have been continuous for months. I had finally gotten a break from the symptoms after almost 5 months. I was almost completely symptom free for a week and a half and now it has started again. I have seen 5 different nuerologist and they all say they have never seen anything like this before and don’t know what to do for me. The one I am see now finally decided she was going to send me to the university to see a headache specialist because she didn’t know what to do. It is exhausting feeling like this all the time. I have tried all kinds of meds and nothing works.

    • Lori Glover says:

      Thank you for sharing. We certainly hope you can see the specialist. We do offer a lenient return policy if you decide to try our lenses. They provide relief for 90% of our customers. Feel free to email Support@AxonOptics.com for more information.

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